April 15th
Marilee had been doing OK with her feedings, taking the full bottle (about 40-45 ml or 1 1/2 ounces) at a time on just about every other feeding. The rest she would get through her NG tube. However, last weekend (the 13th) she started to take less and less to where the most she would take was about 20 ml. This all happened right around the time she had a Hep B shot and also had her eye exam. It was a little frustrating that she stopped really progressing. The Dr's and nurses assured us she just needed time, which I know is true, but still we want our girl HOME!
April 15th
Last Friday a speech therapist came in, I know sounds weird, but they work with feeding issues too. She listened to her swallow and breath while eating and we tried a few different nipples. It was actually quite amazing! She instantly stopped drooling as much and took nearly her full bottle in that feeding even with us changing the nipple out a few times. We finally seemed to have found something that has worked for her! Since then she has taken many more bottles and has finished a full bottle - now 50+ ml several times! In the last 24 hours she took a bottle all but 1 time (so 7 for 8) and took the full or at least minimum amount in most of those feedings. As soon as she takes the full/minimum amount for 8 straight feedings her tube will come out and then 48 hours later she can come home! We are sooo excited and are hoping this will happen later this week.
April 17th
Yesterday the nurse actually took the tube out so I could do some Easter pictures (the tape was getting pretty bad and it was only a matter of time till Marilee pulled it out as she has been known to do! She made it through 4 feedings but had to have it put back in on the 5th. But really, it has been so much improvement!!
April 18th
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